I saw the neurotologist earlier this week. Firstly I got a little over 30 min with him. Unheard of on the time pressed NHS. Secondly he really got my condition. He’d suggest symptoms before I did, including ones previously dismissed as unconnected or even scoft at when I’ve raised them with other doctors. Finally his discription of the feelings and what I feel is happening to me was as though he himself had experienced what I have.
He explained his belief is my problem is due to a artery in neck going into spasm disturbing the blood flow to the ear.
So onto a new drug. Further referral for more physio and some cbt counselling. Back to see him in 6 months. He stated “We can’t cure you but we can arrest or slow your decline and help you be more able to cope.”
A friend with a similar condition has seen him for some time now and she really sings his praises. She’s back driving now so…. Fingers crossed.