My Ménière’s disease has been back with a vengence recently. A couple of weeks ago I woke in the middle of the night to a room spinning around. That led to a horrid night of being sick and not sleeping and my poor wife having to help me through that. About a week later I had another awful attack in the middle of the day out of nowhere – well not really as the pressure in my ear and the tinnitus has been bad since that first attack and I’d felt really unsteady earlier in the day. But this one was awful, imagine a 2000rpm washing machine with you in it on the worst roller-coaster you can imagine. Yep that was close to it. I just lay on the floor hoping it would go. After a while I crawled to the bathroom and lay there until my wife came home. I lost the rest of that day as whilst the spinning slowed it basically didn’t stop all day and I had another spin attack (not so violent) the next day. Since then the tinnitus and pressure have felt bad most days and I’m “walking on rubber” most of the time. That’s a great description from the Ménière’s society which I’ve recently joined.
I’ll be honest I had two weeks basically off work over Easter but did relatively little, partly due to the problems. I try in particular to avoid things like gardening etc. as bending up and down certainly don’t help and I think might be a trigger given two of the attacks above followed a few hours after gardening where I was bending up and down weeding.
So I’ve been feeling a bit down about it. Which then I get annoyed a bit about – I mean there are people with many other issues that you could argue are much more of a problem than I’ve got. This isn’t terminal. I have all my mental faculties. etc. etc. Easy to say but still I get angry with it which probably isn’t helping. It has been a big topic of conversation in my recent therapy sessions.
In other news – looks like I’ve lined up at least one new placement. Just need to go through the various stages of DBS etc. now. I’m still pursuing others to see what happens since once I’ve finished in July with my formal studies I’ll have some more time hopefully. My placement finishes this week but I’ve actually now completed with my clients. So I know I need 63 more hours to get my diploma. I’m hoping that will be all that is outstanding as I’m working hard to try and complete everything else before we formally finish in early July.